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Friday, June 27, 2008

Central Michigan Down syndrome Society


When Sarah was first born, and we found out about her little something extra, we looked around for some local support. We didn't find much. So, I went online and found a wonderful group of people that I have looked to in times of stress and celebrated with in times of great joy. We have been fortunate to meet up with some of them over the last 4 years, but there's still nothing that beats having a local group that you can talk to & meet up with on a regular basis.

Last year, on Mother's Day, we went out to Bob Evans (a Marie Calendar's type of restaurant). While we were having breakfast, a family walked by & stopped in front of our table. The mom started talking to Sarah, and commented on how cute she was. Generally when people do that, it's because they have some sort of Down syndrome connection. And as soon as I saw the little baby in the infant seat, I saw the connection. We didn't exchange information, it was a nice little meeting where we shared something in common.

Fast forward about 6 months. I get a letter in the mail from a woman who was starting up a local Ds group and wanted to know if we would join. I jumped at the chance and called her right away. What do you know, it was the same family from Bob Evans. Their little girl was named Elizabeth and they had just gotten through heart surgery. We set up a recurring meeting at McDonald's for once a month. She decided, since this town is pretty small, and there aren't many kids with Ds, to include kids with other special needs. Sarah's little friend from preschool, Morgan, who has agenesis of the corpus callosum started joining us as well.

Our little support group is growing in numbers and in activities. We have an official website and a date for a Buddy Walk. So if anyone is in the central Michigan area, you are welcome to join!!

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