Sarah has her annual cardiologist appt this morning. "Annual" really means it's been 2 years. She has a small PDA (Patent ductus arteriosus) that has been present since birth. But it's never caused her any problems, she's never been on meds for it. Sometimes they close on their own, which is why we didn't do anything about it 2 years ago. But, if it's still there, we will go ahead and get the catheterization done. It's not open heart, it's a short procedure where they go into a vein through the groin area and close the hole with a small mesh object. Since kids with DS sometimes have issues with being under general anesthesia, she'll probably stay overnight for observation. This wouldn't be so bad, but the only hospital who does this procedure is in Grand Rapids. So it's a bit of a drive.
Because this morning's procedure requires her being under oral sedation, she can't eat anything, which is pissing her off. I had to surreptitiously give Katie some breakfast so I didn't have 2 extremely ornery kids on my hands. But, Sarah is persistent, and tried to sneak some cold pizza from the fridge. I am however giving her some clear liquids, but it isn't helping.
While this PDA hasn't really affected her life, it might cause problems as she gets older if left open. So, some prayers and good thoughts would be appreciated this morning. :)
Friday, January 16, 2009
Prayers for Sarah
Posted by
Amanda
at
1/16/2009 08:43:00 AM
0
comments
Labels: Down syndrome, Medical, Prayers, Sarah
Monday, August 04, 2008
Prayers for Emma Hope
This little girl is having major heart surgery this morning, even as we speak. Her parents lovingly adopted her and a little boy, both with Down syndrome, from Ukraine. This little girl is 5 years old but barely weighs more than Katie. She was given up on, she's been living with this heart defect her entire life. Doctors here in the US have told her parents that this surgery shouldn't be done, as it was unlikely that she would recover from it. But they persevered and found a doctor who gave them hope.
Just pray that this sweet little girl is able to continue her 2nd chance at life.
Posted by
Amanda
at
8/04/2008 08:50:00 AM
1 comments
Labels: Down syndrome, Friends, Medical, Prayers
Wednesday, July 02, 2008
Surgery day for Kennedy
I haven't had a chance to post today, but Kennedy had her spine surgery today. According to her mom's updates, she's now out of surgery & in the ICU. Things are looking good and the doctor's said everything went well! Here's a link to her mom's blog: Life with My Special K's
Posted by
Amanda
at
7/02/2008 06:43:00 PM
1 comments
Labels: Down syndrome, Friends, Prayers